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Seniors

In reply to the discussion: Who to contact about drug prices [View all]

pandr32

(13,113 posts)
28. Pharmaceutical prices are out of control.
Wed Feb 7, 2024, 06:36 PM
Feb 2024

I get an injected drug (brand Nucala) every 4 weeks and originally had to jump through hoops from insurers. I get a total of 300mg every four weeks which is 3 shots in order to control my autoimmune condition (Churg Strauss). When I started I was not quite old enough for Medicare, but did after a year. I also have ChampVA through my 100% disabled veteran husband. They pick up the balance and send me statements.
Since 2018 I have watched the price triple. I also have to go to an oncology center to receive the shots, but could do it on my own if I was only receiving a single shot. You can only get 100mg or 300mg, but it all comes as 100mg preloaded needles so why there isn't a 200mg level or why I can't give myself the 3 shots is not clear.
The price is now over $26,000.00 for my 3shots and they way they've got it is I have to pay $2,900 copay. That's every 4 weeks! For some reason ChampVA has yet to authorize their end. I don't know why this has changed, but we are on a fixed income and my present choice is stop the injections and possibly die or pay $2,900 each month and not afford to live.
I was told there is a grant, but after jumping through hoops it is limited to $2,000 maximum per year. That would hardly make a dent.
I think Big Pharma are a band of pirates.

Recommendations

1 members have recommended this reply (displayed in chronological order):

They certainly can apply the coupons NoRethugFriends Feb 2024 #1
I had a similar experience deRien Feb 2024 #4
No, they cannot. marybourg Feb 2024 #5
The pharmacy clerk tried and tried csziggy Feb 2024 #9
There's a statute that makes it illegal to use coupons with Medicare. TwilightZone Feb 2024 #13
Yes - that is what the clerk was told csziggy Feb 2024 #15
It's completely understandable. TwilightZone Feb 2024 #19
No, they cannot. TwilightZone Feb 2024 #12
Here is a fact sheet nocoincidences Feb 2024 #2
I even checked with Goodrx - my pharmacy prices are lower than most csziggy Feb 2024 #10
Your representative or your senator, but.... Voltaire2 Feb 2024 #3
I am NOT contacting my Senators or Representative csziggy Feb 2024 #11
I also think you should be able to apply the coupons gab13by13 Feb 2024 #6
That's the difference. Your Rx plan is private marybourg Feb 2024 #7
Yeah, I am using Medicare Part D csziggy Feb 2024 #8
There's a statute that makes it illegal to use coupons with Medicare. TwilightZone Feb 2024 #14
The shit that is part D is unfathomable. Voltaire2 Feb 2024 #16
This particular provision was added to reduce fraud. TwilightZone Feb 2024 #22
They always do, and somehow the 'unintended' side effects generally line the pockets of oligarchs. Voltaire2 Feb 2024 #24
I have medicare part D, and have often used GoodRx. NoRethugFriends Feb 2024 #17
That's OK because it's not billed to Medicare. TwilightZone Feb 2024 #18
Wow. That's a really screwed up system NoRethugFriends Feb 2024 #20
Here's the tricky part. TwilightZone Feb 2024 #21
Thank you for the explanation! NoRethugFriends Feb 2024 #23
Unfortunately since I am a private Medicare user csziggy Feb 2024 #30
Its appalling that we have to deal with all this crap mumbo jumbo. IcyPeas Feb 2024 #25
I was all set to use coupons XanaDUer2 Feb 2024 #26
There are industry-sponsored patient assistance programs The Blue Flower Feb 2024 #27
Apparently those are not available to Medicare csziggy Feb 2024 #29
Pharmaceutical prices are out of control. pandr32 Feb 2024 #28
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